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World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo Syndrome, a disease few have heard of.
This special day of Awareness is in honor of the children around the world living with Sanfilippo Syndrome today, and those who have passed away.
It also honors the families of these precious children.
The logo, showing the parent and child holding hands, pays tribute to the special love and bond of parent and child. Any parent can relate to the precious years you are able to hold your little ones hand, and it has special meaning for a parent of a child with Sanfilippo Syndrome.