Privacy Policy

Update : September 8th 2020

LYSOGENE is a Phase 3 gene therapy company focused on the research and development of gene therapy for rare central nervous system (CNS) diseases. As part of these activities, LYSOGENE launched the website  https://www.lysogene.com/as an information hub for the public. LYSOGENE may provide general information about health and ongoing clinical studies but LYSOGENE is not a general practitioners group and does not provide any medical consultations or prescriptions.

Service is the https://www.lysogene.com/ website operated by Lysogene.

As part of this activity, LYSOGENE may receive specific data that allows the identification of natural persons. This data is called “personal data”. In order to ensure we are as transparent as possible, we suggest that you read our privacy policy, which tells you how we collect and process your personal data.

If you have any questions about this policy or about how LYSOGENE processes your personal data, you can contact our Data Protection Officer (DPO) at: dpo@lysogene.fr.   

DATA CONTROLLER

WHAT DATA ARE COLLECTED AND HOW IS IT USED?

Usage Data: Usage Data is data collected automatically either generated by the use of the Service or from the Service infrastructure itself (for example, the duration of a page visit). Usage Data may contain Personal Data. This Usage Data may include information such as your computer’s Internet Protocol address (e.g. IP address), browser type, browser version, the pages of our Service that you visit, the time and date of your visit, the time spent on those pages, unique device identifiers and other diagnostic data. We collect Usage Data and process them in accordance with this privacy policy.

Personal Data. Personal Data means data about a living individual who can be identified  from that data. We collect personal data you provide us when contacting us by email or through our contact form.

Sensitive Data. You acknowledge that any personal data concerning your health or your relatives’ health, and any biometric data or genetic data are very sensitive data. If you choose to provide us with such data you specifically agree that such sensitive data will be processed in compliance with the present privacy policy.

Anonymous statistics. We may collect anonymous data for the statistical analysis of the use of our services (number of connections, access time, etc.). These data do not contain personal data and do not impact upon or threaten your privacy.

Cookies. We use connection and browsing cookies. A cookie is the equivalent of a small text file stored on the user’s device. A cookie can be used for an authentication, a session and to store specific user information, such as site preferences. A cookie’s purpose is not to identify you personally. However, it may contain certain personal data.

Refer to your web browser documentation to configure cookie processing.

Examples of cookies we use:

  • Consent cookies: Store your acceptance to the cookie policy
  • Preference cookies: Store your language selection, your preferences and various settings
  • Security cookies

Cookies are stored for a period of a period of one (1) year.

To have more information about the cookies management please refer to the documentation of your web browser. Here some link to the relevant document of popular web browsers.

Internet Explorer :

https://support.microsoft.com/en-gb/help/17442/windows-internet-explorer-delete-manage-cookies

Safari :

https://support.apple.com/guide/safari/manage-cookies-and-website-data-sfri11471/mac

Firefox:

https://support.mozilla.org/en-US/products/firefox/protect-your-privacy

Google Chrome:

https://support.google.com/chrome/answer/95647?hl=en&co=GENIE.Platform=Desktop

Third Party analytics. We may use third-party Service Providers to monitor and analyze the use of our Service.

* Google Analytics

Google Analytics is a web analytics service offered by Google that tracks and reports website traffic. Google uses the data collected to track and monitor the use of our Service. This data is shared with other Google services. Google may use the collected data to contextualize and personalize the ads of its own advertising network.

You can opt-out of having made your activity on the Service available to Google Analytics by installing the Google Analytics opt-out browser add- on. The add-on prevents the Google Analytics JavaScript (ga.js, analytics.js, and dc.js) from sharing information with Google Analytics about visits activity.

For more information on the privacy practices of Google, please visit the Google Privacy & Terms web page: http://www.google.com/intl/en/policies/privacy/

 

THE PURPOSES FOR WHICH YOUR DATA IS USED AND RETENTION PERIOD

In compliance with applicable laws and regulations, and depending on your request, we will use your personal data for the following purposes and store them for the following periods:

Purpose of the personal data processing Storage period
– To provide and maintain our Service

– To notify you about changes to our Service

– To allow you to participate in interactive features of our Service when you choose to do so

– To provide customer support

– Understanding how people use our services to ensure and improve the performance of our services

– To monitor the usage of our Service

– To detect, prevent and address technical issues

 For as long as is necessary in order to fulfil these purposes.
To answer your questions, to assess your eligibility to be enrolled in clinical trial or compassionate use programs or provide you with information in relation with Lysogene’s research, clinical or commercial programs. Until you withdraw your consent for this specific purpose.
Register your contact information in dedicated data bases, newsletters or emailing list Until you withdraw your consent for this specific purpose.
Marketing/advertising to inform users about our services Until you withdraw your consent for this specific purpose.
Remarketing and serve ads based on your past visits to our Service Until 1 year from your last connection to our Services.
Keep records of your contact information in order to be able to contact you in the future for any of the foregoing purposes.

 

Until you withdraw your consent for this specific purpose.

 

Legal purposes. We inform you that all personal data collected in furtherance of the provision of Services may be used to comply with our legal obligations and to prevent or investigate possible wrongdoing in connection with the Services.

Behavioral Remarketing. We may use remarketing services to advertise on third party websites to you after you visited our Service. We and our third-party vendors use cookies to inform, optimize and serve ads based on your past visits to our Service.

* Google AdWords

Google AdWords remarketing service is provided by Google Inc. You can opt-out of Google Analytics for Display Advertising and customize the Google Display Network ads by visiting the Google Ads Settings page: http://www.google.com/settings/ads

Google also recommends installing the Google Analytics Opt-out Browser Add-on – https://tools.google.com/dlpage/gaoptout – for your web browser. Google Analytics Opt-out Browser Add-on provides visitors with the ability to prevent their data from being collected and used by Google Analytics.

For more information on the privacy practices of Google, please visit the Google Privacy & Terms web page:     http://www.google.com/intl/en/policies/privacy/

* Twitter

Twitter remarketing service is provided by Twitter Inc.     You can opt-out from Twitter’s interest-based ads by following their instructions: https://support.twitter.com/articles/20170405

You can learn more about the privacy practices and policies of Twitter by  visiting their privacy policy page: https://twitter.com/privacy

* Facebook

Facebook remarketing service is provided by Facebook Inc. You can learn more about interest-based advertising from Facebook by visiting this page: https://www.facebook.com/help/164968693837950

To opt-out from Facebook’s interest-based ads follow these instructions from Facebook: https://www.facebook.com/help/568137493302217

Facebook adheres to the Self-Regulatory Principles for Online Behavioral Advertising established by the Digital Advertising Alliance. You can also opt-out from Facebook and other participating companies through the     Digital Advertising Alliance in the USA  http://www.aboutads.info/choices/, the Digital Advertising Alliance of Canada in Canada http://youradchoices.ca/ or the European Interactive Digital Advertising Alliance in Europe http://www.youronlinechoices.eu/, or opt-out using your mobile device settings.

For more information on the privacy practices of Facebook, please visit Facebook’s Data Policy: https://www.facebook.com/privacy/explanation.

No other purpose. Apart from the above listed purposes, we will not use your personal data for any other purpose.

 

TRANSFER OF YOUR PERSONAL DATA 

Your personal data may be transferred to — and maintained on — computers located outside of your state, province, country or other governmental jurisdiction where the data protection laws may differ than those from your jurisdiction.

We will take all steps reasonably necessary to ensure that your data is treated securely and in accordance with this privacy policy and no transfer of your personal data will take place to an organization or a country unless there are adequate controls in place including the security of your data and other personal information. In particular, we require that our third-party service provider comply with applicable law regarding data protection.

TECHNICAL PROTECTION OF YOUR DATA

We implement technical protection measures in accordance with applicable regulations. Lysogene’s infrastructure is protected by firewalls and identity management, ensuring all network security. All computers are protected by up-to-date antivirus; high-level password policy and encryption. Our main servers are located in France and in the U.S.A and we use appropriate security levels to protect your privacy.

WHO ACCESSES THE DATA WE COLLECT?

Us. Persons directly employed to ensure the processing and purposes provided for in this policy.

Technical service providers/ data processor.

Data Processor (or Service Provider) means any natural or legal person who processes the data on behalf of the Data Controller. We may use the services of various Service Providers in order to process your data more effectively.

Third parties that need to access to the data in order to allow us to fulfil the purposes mentioned in this policy include, without limitation:

All our third-party providers are bound to access your personal data in accordance with applicable law and with this privacy policy.

Other third parties.

We never provide your personal data to any third party without your express written consent.

YOUR RIGHTS

You have rights of access, rectification, erasure, restriction and portability over your personal data, in accordance with the Articles 15, 16, 17, 18 and 20 of the General Data Protection Regulation (EU) 2016/679.

You may exercise these rights or request any information on this subject simply by contacting us: dpo@lysogene.com.

DATA RELATING TO MINORS 

Access to our services is, in principle, reserved for adults.

By way of exception, and unless specifically stated otherwise, minors may access our services if they have obtained the prior agreement of their legal representative. In any case, these minors remain subject to the laws that protect them.

Minors have a special right to control the processing of their personal data through their legal representative.

For any specific request on this subject, please contact: dpo@lysogene.com

CHANGES TO THIS PRIVACY POLICY

We may update our privacy policy from time to time. We will notify you of any changes by posting the new privacy policy on this page.

You are advised to review this privacy policy periodically for any changes. Changes to this privacy policy are effective when they are posted on this page.

Lysogene COVID-19 update

Get In Touch

Don’t hesitate to contact us if you need more help.